In the meantime, the immunologist talked to us about testing for another rare disease called Wiscott-Aldrich sydrome (http://en.wikipedia.org/wiki/Wiskott-Aldrich_syndrome). We are not convinced that this is what Ibrahim has, but will probably go along with the test anyway.
We told our doctors today that Saira received a dose of Penicillin while she was in labor with Ibrahim and asked if this could be an unusual reaction to penicillin. This has been reported in the literature, but quite rare. When we first came to the ER, Ibrahim received 2 days of an antibiotic very similar to Penicillin. If this is indeed a reaction to that antibiotic, it might explain why there has been such a delay in improvement. Tomorrow they will send out a test to check this theory.
There will be no further lab result until tomorrow 4 a.m.
Saira and Saleem, I am thinking of you and Ibrahim and praying hard for you all. I am happy to hear about not needing any more platelets in the last day. Thank you so much for keeping this updated so regularly with all that you have going on. It is such a relief to be able to follow Ibrahim's progress closely. Allah agay ka rasta asaan kar de. With all my love and dua,
ReplyDeleteSarah